Christmas Smiles

Baby GL is having a very long nap.  Once he wakes from all this I'm sure he'll keep us awake for days.  His condition is improving.  All of his tests came back negative, which means no RSV.  The doctor also says it's not pneumonia.  That's wonderful news for us because that means he's not aspirating and we won't need to deal with GI during this visit. Even though he doesn't have either of these severe illnesses he is still dealing with a nasty bug.  His lungs are just not strong enough to handle any kind of respiratory bug.  We hope once we're past flu season we wont have to worry as much.

Yesterday the doctors made an attempt to stop the paralytic meds. As I and my husband suspected, it didn't go well.  A sedative isn't strong enough for our stubborn Baby GL.  He never enjoyed intubation so we expected him to fight, which he did.  As a result he was put back on the paralytic.  He just needs to recover because when he fights he clamps down and can't get the great airflow he needs in his lungs.  They may try again removing the paralytic tomorrow.

Today the RT removed the ion meds from his breathing tube.  He's been weened over the last day.  The nurses also switched over his feedings and meds.  He's been on TPN IV nutrition and only small amounts of formula.  He's officially off the TPN now and moving to full formula feedings via g-tube only.  He's been getting an Epinephrine drip for the last couple days also they are weening.  The last thing they removed was the foley catheter.  Now they just weigh his diapers as they've done during past visits.  I think until tomorrow that's all the changes.

I stayed with Baby GL last night so that he wouldn't be alone in Christmas.  About 4am the nurses and RT came in for one of his breathing treatments, as well as another x-ray.  I had to leave the room for that.  Before I left I was pleasantly surprised that Santa didn't forget Baby GL.  He had some wonderful gifts at the foot of his crib waiting for him.  He got a Mr. Bump toy which brings back so many memories for me.  I loved the whole Mr. Men series and it just brought a smile to my face.  It was so sweet that he was remembered, even in the ICU.  He even had a visit from Santa on Christmas Eve morning.  One of the doctors grows out his beard and dresses up for all the kids.  It really warms a families heart to know the kids are being so well taken care of.

The most information we have for Baby GL coming home is that they are looking at Friday to be their goal for extubation.  I'm hoping it will be earlier.  It's really up to him, though.  Baby GL has always decided his schedule.  We had hopes to have him home sooner than a couple weeks but it doesn't look like that may happen.  He's in a safe, protective place for making him completely healthy so we can complain.  We'll have some time now to sanitize our home and make it very clean for when he does finally come home again. 

Santa's sleigh? Ambulance ride

There is a point when you look into your child's eyes and you feel like time has slowed for just a moment.  It's in that moment today that I felt fear overwhelm me and my adrenaline cruise control came on.  This morning I made a last minute appointment to see the pediatrician about a cough and heavy breathing that Baby GL has been having for about a day.  The cough has been an issue we've been dealing with on and off for weeks now, but yesterday it got progressively worse. We've had a few nights of little sleep due to his discomfort.  I feared that we were going to have an issue with putting him in the car seat since the last time we had breathing issues the car seat just accelerated the problem.  My feeling was correct and I watched as Baby GL turned dusky, eyes wide open, just staring at me.  He couldn't cry, not even gasp for a breath.  That was a moment I will never get out of my head. It only took a second for me to grab my phone and just dial the 3 numbers a parent dreads.

The moment I took Baby GL out of the car seat and laid him on the couch he was able to breath and cough.  As I was speaking to the responder on the phone he was kind of crying a little, but then soothing himself with sucking on his fingers.  It was only minutes and we had 3 EMTs in our living room.  There decision was made quick to just scoop him up and take him to the ambulance.  We decided Children's hospital was the best place to take him since he was there just months ago being treated for pneumonia.

The whole ride in I could hear him cry.  It was actually comforting because I knew he was breathing...and fighting with the EMTs.  Once at the hospital he was prepared with an oxygen bag, monitors, and a whole slew of doctors and nursing staff.  Deja vu, I think we've been here before.

One thing they did right away was measure his blood gas, which measures how much CO2 was in his blood.  His normal range is about 50-60.  Today, it was 100.  Intubation was brought up at that point. Since I've seen him intubated already so many times the doctors made the attempt to try a CPAP and see where his gases go.  It wasn't a successful try.  He fought the RT who tried to get the mask put on.  He was all fists in there.  The nurse nicknamed him "ALI".  We discussed sedation, but seeing his drop in saturations when he got excited the best decision was just to intubate.

After being sedated they were successful in intubating Baby GL.  The one thing about intubation is that it will give him a rest.  His little lungs have been working overtime.  After intubation in the ER they finally has a room ready for him in the Pediatric ICU.  Up there he was undergoing more tests and a pic line needed to be put in.  He had a pic line, an arterial line and a foli (? not sure about the spelling).  It's basically a line that I'm guessing goes to the urethra because it's meant to collect his urine to measure his output.  He needed restraints on his arms because of all the lines.

Since we were continuously being kicked out we took that as our cue to leave for a bit.  After a couple hours, now into the the early evening, the doctor called me back with an update.  There was a concern about Baby GL having some spasms in his arms so they wanted a head CT to check if he possibly had a seizure.  Then he continued to explain that since he does have a whole in his heart and his lung are already so damaged he his as higher risk for pulmonary hypertension.  Because of that he was being put on an type of inhaled ion med.  It was connected right to his breathing tube.

When we finally arrived back at the hospital there was still a lot going on.  The CT came out fine, no seizure.  However, he was dropping his heart rate which they are still going back to the idea of the pulmonary hypertension.  He was connected to the ion drug and had another x-ray to make sure his tube was correctly placed in his airway.  Due to our little Baby GL being such a fighter he needed to be not only sedated but given a paralytic for the time being until he can relax in his new settings.  The nice thing about the paralytic is that he will not remember any of this.

Most likely we will be spending Baby GL's first Christmas on the fifth floor of Children's hospital.  He'll be in good company, I think.  There are some other babies there.  Tis the season for RSV and other respiratory junk going around.  We just hope he won't need to be in there woo long. 

Growing

We are nearly to Baby GL's first Christmas.  Prior to Christmas coming, Baby GL had another synergist shot last week.  The nurse comes to give him his shot.  That one is very important to protect him from RSV which preemies are at higher risk at getting.  He'll get the shot monthly through the winter.  I can't say it's a pleasant visit from Gianluca.  He's never crazy about the band aid on his leg.

His weight during the visit was 11lbs 5oz, 23 inches.  He must have hit a small growth spurt because the time between 21-23 inches went very quickly.  I'm putting away more clothing now because there's no room to stretch his legs.  I find a lot of his clothing to make him feel better physically, because so many are huge through the tummy, but very short in the length.  For Baby GL, who has shorter legs and arms, it works towards his advantage.  He may not realize the sizing issues now, but I can and he will see his pictures when he's older.

Our day to day is pretty much the same, lately.  We've been trying to work more on his exercising.  We haven't had a visit from therapy in the last 3 weeks so we've been doing the exercises we were taught and extra we feel he'll love and benefit from.  Most of the time we're working on getting him to laugh.  We get goofy and he gets the "you're strange" look on his face.  However, we do crack a giggle sometimes. He seems to have a better mood in the morning so we'll see more smiles and giggles then.

We've been struggling with our sleep the last few nights.  Baby GL will begin screaming without even waking up.  Usually we can fix it with the pacifier, but it won't always last long.  It's like he knows when you get in bed and lay down because that's the point he'll explode.  This morning it occurred to me why he may be having some issues.  In an attempt to be a "health promoting" Mommy and get in the band wagon of brown rice I tried it on Baby GL. Apparently, there's a group trying to get parents off the habit of feeding white rice as the 1st food to babies.  I agree with the logic, but i think it's hard for Baby GL to digest which may be the reason for the sudden change in his sleep habits. As much as I would love to promote a health start to my son's diet I can't support his screams of pain.  In the Ayurvedic diet (Indian), brown rice is actually not great for easy digestion.  I will go back to the plain single grain rice for him and we will see if it makes the difference.  I hate to experiment with my son's meals but I just want to find what makes him most comfortable and promotes good growth.

Unfortunately, Baby GL is a little too young yet to take part in the holiday meal and many festivities of the season.  I get his attention when I sing him Christmas carols.  Again, I get that look of uncertainty from him.  I like to think he gets that it's a holiday.  He definitely knows it cold outside, because he gets bundled so tightly when we go out. Maybe no sledding this winter. 

No More Nurse

Snuggled and sleeping in my arms while I write.  Baby GL is doing great. We are snowed in for the day so it's perfect for a little lovin' time.  He is getting so clever each day.  He loves to pull his oxygen cannula down from his nose and suck on it in his mouth.  I'm constantly re-taping the cannula in his nose.  He's also getting closer to rolling. He kind of rolls up a little and drops to one side, but then straightens out to roll back to flat. He'll go back and forth while pulling on his toys on his play mat.  

This week Baby GL finally arrived at 11lbs, 22 inches.  We're hoping to get better results with the new feeding schedule.  His reflux seems to be improving.  He still will have some vomiting episodes.  This morning during his morning meal he vomited and looked at me giggling.  He doesn't giggle much so I just wonder what he was thinking at that moment.  Maybe "ha ha Mommy has to clean me up!"  

As we've adjusted to the new feeding schedule, we've actually made some changes.  Our hopes is to get off the feeding tube.  With a 2oz feeding, Baby GL does really well as finishing without the need to use the tube.  What we decided to try was bumping him up to 2.5oz by bottle each feeding, which would be 2oz less we've need to feed via pump overnight.  By doing that we may be able to move to one extra bottle feeding and even less time by pump.  It's a process and it takes time to make the adjustments.  Patience is not always on our side. We're trusting we know what we're doing because now we've been discharged from our weekly nurse visits.  She'll now only come once a month to give Baby GL his synergist shot to prevent RSV, which is a respiratory illness that affects preemies.   He'll still have his therapy visits so at least we're not completely on our own.

Each day is such a blessing for us. Now moving into the holiday season we are having so much fun with Baby GL.  I hope that we can get him out in the snow one of these days, but I'm not going to push it.  We'll just continue to spend our time snuggling and playing. 

9 Months Old

Officially 9 months old already.  I can't believe where the time has gone.  Three months ago we were still in the hospital.  In these last three months we've had a few scares, but Baby GL has battled everything with a smile on his face.  His most recent weight is 10lbs 12oz and still around 21 inches.
This week we visited the GI (Gastroenterology) clinic.  It was a good visit and one that opened our eyes a bit.  I went in concerned they were going to make us put the G/J tube back in with all the problems we've had with reflux and vomiting.  The GI doctor is most concerned about his weight. He made me feel better about the reflux.  I knew it was a typical problem in babies, but I didn't realize how common it was.  The recommendation to add rice cereal has improved his reflux greatly.  It's actually helped him sleep more soundly at night, too.  He's sleeping so well we can start using the Nap Nanny for play time.

One thing I've been struggling with is Baby GL's feedings. He hasn't been gaining weight as well as he should be.  Because of that I've not known how to feed him.  During the day he hasn't wanted to take a bottle very well.  I think he's had a stuffy nose.  Without a good amount through the bottle I'm left to feed him more at night, which results in him getting full.  At the GI clinic I was able to speak with dietitian who put together a feeding plan for us.  I didn't realize how wonderful it was to have that help. We used to have a speech therapist coming to the house to work with him but she just stopped coming.

The new feeding plan is 4 feedings during the day, 20z each. If after 15 minutes Baby GL doesn't finish the 2oz then we bolus the remainder into his g-tube.  Over a 9 hour period overnight we will feed him with the pump a little over 1oz an hour.  It amounts to 18.5oz a day. We still add the 2ml of oil and the rice cereal, also.  It's helped really push us to stay on schedule.  I posted the feeding schedule on the cabinet so there's no excuses from my husband or myself as to why a feeding didn't happen.  So far we've been pretty successful.  We'll hope for some good growth this week.

Aside from GI we did go to the pediatrician.  Baby GL was due for his second Hep B shot and flu shot.  He immediately started screaming with each shot.  He made it through the evening without a fever, which was very good.  However, he was a little restless leaving restless as well.

The pediatrician is somewhat concerned about his growth as it's charting.  He recommended we see a genetics counselor to maybe see if something genetically is happening.  We actually already had a time set up for July in our plan of specialist appointments. 

Baby GL is a small baby.  As much as we want him to grow, it's been nice to have a small baby for a little while.  He spent 6 months in the hospital, but we still brought home a newborn.  Baby GL's corrected age is just about 6 months, but he still in the tail end of newborn clothes.  I think we'll come to a point where he'll grow so quickly that he may skip a size.  We'll be hoping for the days when he was small.

Eat, Baby, Eat

It's been a huge challenge, how do we feed Baby GL.  From the beginning we've battled how to get the proper nutrition for Baby GL.  He wasn't good at taking a bottle at the beginning so we had to skip even working much on it for quite some time.  Now, when we thought we were through all our battles we are coming back to needing to skip it again. Baby GL just doesn't want to take enough to thrive without a g-tube feeding.  We've had even more issues with his reflux so when we do get a good feeding it just comes right back up.  The challenges are never ending, so it seems.

The newest recommendation by the pediatrician is to add some rice cereal to the formula to thicken it up.  Well, that just added more challenges.  It was so thick it was difficult to get through the bottle. The end result was a screaming, hungry child. I finally gave up and brought out the feeding pump and fed him the rest of the bottle though the tube.

We need to get though these challenges in order for Baby GL to grow. His weight today was 10lbs 12oz, which is only a 4oz gain in a week. We hope for an ounce a day and with the vomiting and not eating we are hitting a brick wall in progression.

Aside from all the feeding challenges, Baby GL is doing great.  There's been a concern about his reoccurring cough.  We had a chest x-ray done just to rule out pneumonia and we did.  His lungs look pretty good, actually.  We have been told to just keep doing what we're doing. I have a feeling the reflux is playing a role in the cough.

Thanksgiving went very well.  No turkey for Baby GL, not even his sweet potato.  With the battling we've had with feedings I've been too distracted to remember trying solid foods again.  I don't think he's missed it too much.  As long as he has something to chew on he's pretty satisfied.  We're ready for that first tooth anytime now.

Our day to day now is to just get him fed and keep him entertained. He still loves his bouncer and I got him a large FAO Schwartz plush lion that he just adores.  He loves to look at it and play with it's face.  It seems to keep his attention well.  I think we're getting more laughs from Baby GL now, too.  He's full of smiles but it's that belly jiggling laugh I'm waiting for.    

Solid Food

We have officially recycled the milk storage containers in the freezer by using them for baby food.  Baby GL has been on mostly all formula now for about a week and a half.  We started that when we opened the last milk from the freezer.  I do nurse a little bit, but he goes through stages of wanting to nurse and times he's just too impatient to work for it.  It is a relief not having to remember the 3 hour schedule I was on. We made it over 8 months so I feel good about the nutrition for Baby GL.  Mixing formula has actually made it easier to prepare meals for him.  Up until now it's either been waiting for milk to thaw or quick running to the pump.  I think if Baby GL didn't need the extra calories or nursed without the necessity of a shield to latch on we may have been able to go longer.  I will keep nursing once or twice a day just to give him a transition period.  I think it's more for myself that it's difficult to let go.

Baby GL seems to have recovered from whatever he may have caught last week.  Every once in a while he has a cough, but the Albuterol clears it up pretty effectively.  Even with a little cough and illness Baby GL kept up his smile and cheerful glow.

Baby GL's new favorite toy is his bouncer.  We have officially retired the swing.  That swing was with him in the NICU so I guess he's had his fill.  He wants to be more active now. Lots of kicking and grabbing. In the swing he would jump so much he nearly jump over the edge. We've concluded he must be teething, too.  With everything he puts in his hand it will get to his mouth.  Even his pacifier is a toy.  He chews on it more than sucking.  He'll pull it out swing it around and manages to get it back to his mouth.  I bought him a ball with textured spikes to get him feeling and he will grab it with both hands and lift it to his lips. There's nothing that won't go to his mouth.  His cousin gets a little jealous of Baby GL in the bouncer.  He even tried to get in with him which is never a success.  He plays with all the toys on it and will snuggle in next to Baby GL a little.  It's very tender to watch.

With Baby GL teething he's lacking an appetite.  It's been a struggle to get him to take much by bottle.  The g-tube has been getting a lot of use just to make sure he gets what he needs each day.  Baby GL uses the bottle nipple again as a teething toy.  He's figured out he can bite down on it and he'll pierces his lips around it.  The problem is that he lets the milk dribble down his chin instead of drinking it.

He doesn't want to take a bottle, but he does want to chew on things so the only solution was to try some solid food.  Yesterday was a huge milestone.  I prepared some sweet potato and watered it down with formula.  I only put small dots on his spoon to try it.  His first few tastes resulted in a curled lip and a look of disgust.  After a few tries he seemed to enjoy a little something in his mouth.  He even managed to give me a few good swallows.  I didn't get much in, maybe a quarter of a teaspoon but it was a good start.  I tried again today and I got pretty much the same response aside from the curled lip.  He helps the food down with a finger or four.  What I found to be more effective was putting some food onto a teething brush so while he got a little gum massage he sucked the potato off.

We are so excited to go into the holiday season with Baby GL.  We are making so many memories already and we feels so fulfilled by him.
 

New tube, new cough

So we had a successful transition to the g-tube last week.  The removal of the G/J-tube was pretty easy and the new mic-key button went in quickly.  We were able to have it done right in clinic, no need for radiology like we needed to replace the G/J.  The one shocker is that if the mic-key button breaks or falls out, more like is pulled out, I will be the one to replace it. Not sure how comfortable I am with that, but when or if that time comes I will have to deal with it.  It's actually quite a small device.  Maybe only a couple inches if that.  It has a balloon as the other devices have that just gets filled with water once inserted and it stays in place. With the button we are able to disconnect the feeding tube so that all that he has throughout the day is this small 1/2 inch diameter button that sticks out about 1/4 off the skin.  It is much easier to take care of compared to what we've had up until now.

The weekend went pretty smooth aside from a worsening cough.  I started doubting my decision to change his tube because he was vomiting a lot of his milk.. At times it was like the occasional spit up.  I did have the nurse come on Monday to get him checked because the vomiting is when we worry about aspirating.

The nurse actually said he sounded pretty good in his lungs.   She instructed us to do his Albuterol treatments every four hours to help open his lungs. The hope was to break up whatever was there and reduce his cough. The great news was that even after his issues he managed to gain weight, bumping him to double digits, 10lbs 1oz, 21 inches.  What a relief to see the scale go up.

Unfortunately, we continued to have issues with that cough.  He wasn't keeping much milk down at this point.  By Wednesday we were calling the nurse.  We were going through towels and many changes of soiled clothes.  We ended up getting him into his pediatrician to take a look at him.  The nurse worried it could be pneumonia again.  I can't help but laugh a little at every new event that happens because it feels like we'll never move away from these worries and problems.

Well, the pediatrician had a better reaction to Baby GL's symptoms. He tested his oxygen saturations to see if he was getting enough.  The recommendation was to bump him up to .5 liter from his .25 liter just to get him past this.  We were to continue with 4 hour Albuterol treatments, and he put him on a cycle of both Amoxicillin and Prednisone.  The Prednisone worried me only because I know how it affected me and couldn't image how it would affect a small infant.

We got our answer that night when Baby GL awoke at 12 midnight and never went back to sleep.  We rocked, we soothed but nothing calmed him.  He had a fever, about 101, so we were trying to bring that down. His hands were like fire. We ended up, by about 6am, giving him a bath.  It seemed to help, and he did sleep, but only a couple hours, maybe.  By late morning his fever spiked 102 so I called the nurse and the pediatrician.  The Pediatrician's recommendation was to ride it out. Between the two meds they would resolve whatever was happening, but sometimes they take 24 hours to kick in.  The nurse came to check on him and was still worried as she was the day prior.  However, we were told to wait.  I did ask about giving Baby GL Pedialyte.  When I fed him he took a bottle like he had never been fed before.  Those signs showed me he was maybe dehydrated.

As the day progressed he did take a couple ounces of Pedialyte and his fever came down.  His cold hands returned, what a relief to feel those clammy, cold, saliva-soaked hands.  Even through the fever Baby GL was such a trooper.  He was smiling and cooing as he had before. I noticed a lot of relief when he finally got a good long nap.

By Yesterday Baby GL was pretty much back to normal.  No more fever, no more vomiting, just happy smiley baby.  PT even came on and he showed off as he does like he never had been sick.  We tried him in his bouncy saucer this time.  He's still small for it but with a pillow under his feet and a blanket behind for a small support he did great. Baby GL actually liked it.  We didn't want to prop him too much because our goal is to strengthen his core and neck muscles.  He's being doing much better at supporting his head.  So this is our new toy. Between the bumbo and bouncer he'll be busy. I think his favorite is just lying on his back on his play mat. He can't get enough of his lion.

I think one of my favorite moments happened this morning.  Baby GL welcomed us with his gurgly "Good Morning" talk.  He wakes with conversation, which is much more pleasant than cries and screams.  I spent 30 minutes this morning listening to his stories.  He is so articulate that you can almost imagine the words he's trying to make. There's a quiet, interested voice during conversation, then the occasional excited squeal, followed by more soothing coos.  Even his tongue and mouth action changes as if there are words developing there.  Maybe other parents don't think those coos and gurgles are as meaningful.  Baby GL continues to exceed our expectations of how quickly he'll progress that every moment is so meaningful and memorable.  One thing I forgot to add was that when the nurse came back on Wednesday she weighed him again, 10lbs 4oz.  

Halloween Scares

I never should have called Baby GL boring.  He made up for it this week. We have been battling how to change his feedings.  If it was up to the doctors Baby GL would be on a tube feeding for another 6 months or more.  Well, as the parents we are woken up midway through the night by our child screaming.  His schedule has been nursing and oral feeds during the day then tube feedings into the jejunum part of the tube which directs the milk into the intestine.  It completely bypasses the stomach leaving him feeling very empty and hungry.  After all day eating he gets hungry at night even though he's get a full feed.  

To try and combat this I decided to try feeding him into the gastric part of the tube Friday night.  It would be just as he had all his time in the hospital, everything going to his stomach, just in smaller amounts over a longer period of time.  It was a very successful weekend doing the feeds this way.  He went three nights without any major issues.  He still deals with the gas and I think he gets full towards the morning without having a break in the feedings, but otherwise I feel he felt better.

One thing we started noticing more of was a leak in the tube which was a whole another issue.  I've noticed in the past that the jejunum port doesn't have a really tight seal so I would find yellow stains on Baby GL's clothing.  Especially over the weekend, with not using it, I noticed it even more.  It's disturbing because you wonder what is it that is coming through the tube.  With his gastric feeds I did notice a little milk coming through the jejunum, but still with a yellow substance, too. I ended up taping the port closed to prevent the leaks which could only be a temporary fix.

The nurse came on Monday as she does weekly.  I told her about the tube so she was able to contact the GI clinic about getting it looked at. I needed to go through Speech and the doctor that did his swallow study before I got the okay that I was doing things correctly.  As a result they agreed to remove the G/J-tube and replace it with a G-tube button like he had for about a week in his second visit in the hospital. It will be such a relief to do away with the G/J tube.  It's awkward and has caused us more issues.  I think it's slowed his progression towards full oral feeds.   

With the nurses visit I was relieved to find I did something right in his feeds because he gained 8 oz.  Now he weighs 9lbs 14oz and 21 inches.  I've tried to be very careful in measuring the amount of food he gets as well as trying to increase his amounts in oral feeds.  The one thing I'm finding is that my freezer is nearly bare of milk.  I'm not sure I feel ready giving him just formula, but I think I will be able to continue nursing and just formula as the supplement.

So after all that we still had more issues last night.  Around 2:30am I woke to his feeding pump alarm telling me his food was empty.  When I went to take it off  everything around it was wet. The gastric port now is leaking.  What a headache.  At about 6am I tried reconnecting his feeding and I couldn't get a tight connection.  Even with tape and a clamp it leaked and left me doing another load of laundry.  Because of the leak Baby GL didn't get his full amount of feeds for the night and I'm not sure what to do to get through tonight.  My husband and I discussed a trial run with overnight oral feeds.  We may be forced to try it tonight. 

Well, after all that, Baby GL had his first Halloween.  We didn't go trick-or-treating, but we did dress up.  I was so excited to find a giraffe headband so he wore that a few times last.  Saturday, while sitting with his uncle he had his Trick -o- Treat tee.  My sister and I escaped to a haunted house for a night out without kids.  My sister and nephew dressed up to trick-or-treat on Sunday. They went as mama and baby bumble bees.  Baby GL wore the pumpkin his cousin wore his first Halloween.  I wasn't sure it would fit because it's a newborn size. He's almost 8 months and not quite 10lbs, but we are almost to the next set of clothing.

So now we are looking forward to tomorrow.  I worry a little if we're making the right decision switching him.  Last night with a bottle Baby GL started coughing and his whole bottle came up on me.  That's when it's scary because it's on the way up you worry about aspirating. He seems to be fine but our nurse will be coming to check him out today just to make sure his lungs are clear.

Aside from all our drama, my husband and I commented on Baby GL's voice. In the NICU we worried if his vocals would recover from his repeated intubations.  Well, we have be reassured of his recovery, loud and even louder.  He loves talking.  He gets louder everyday and his vocalizations are changing.  It's incredible to witness those changes.