We are so thrilled to have Baby GL back home. It's taken a few days to adjust to his schedule. On Monday he went to see his Pediatrician. He was very impressed with how great his lungs sounded. He lowered his sedative dosage as part of the weening process. Today we'll be calling the Pediatrician to adjust dosage again. It's a slow process to prevent withdrawals. He still will continue getting his 2 daily Lovenox injections. We have an appointment set up for an ultrasound in a few weeks to check the blood clot. If all looks clear we'll be able to get off the blood thinner.
So we've been playing around with Baby GL's feedings. The first few nights he was home he was really restless, which made us restless because we wouldn't sleep. He came home on the schedule he was on prior to going into the hospital. We were able to tweak that a little bit. He would get 2.5 oz of formula 4 times a day and then an overnight feeding by pump into his g-tube. Well, the 2.5 oz was very easy for Baby GL to quickly consume so I bumped him up to 3 oz. He managed that with no problems. His reflux seemed to really improve over these last few weeks which keeps him from vomiting. So with the 3 oz he was getting less pumped overnight. We still saw how restless he was so I adjusted a little more. Instead of only getting 4 feedings by bottle we began feeding him all by bottle, which begins at 8am and finishes at 11pm. The luxury of have a g-tube is that he can get a bolus feeding when he's sleeping so the final 11pm feeding is usually fed all through the g-tube. The last couple nights we've been on this schedule, Baby GL has slept so peacefully and slept through the night again. I can't say the doctors will agree with our methods, but I can see how much better Baby GL is.
The nurse came on Tuesday to check in since now we are back on her services. He was weighed and we must be doing something right. He was 11lbs 11oz and 23 inches. He's really been gaining well which is great since he lost so much in the hospital.
Baby GL has really been showing us how big he is. Only in this last week I've seen so many changes. We were able to get a teaspoon of rice cereal in him by spoon, which he seemed to like so we'll continue working on that. He is doing so much better lying on his tummy. He'll push up a little but will just be lazy most of the time and suck his thumb. He seems to fall asleep anywhere now. I could never get him to lay on my chest and fall asleep. Now he seems to really love it, but only on Mommy, not Daddy. This morning he fell asleep playing on his back under the play gym. I think after everything that has happened he's just finally getting into his own. He's happy and comfortable and I think he really knows the difference when he's home compared to being in the hospital.
So we've been playing around with Baby GL's feedings. The first few nights he was home he was really restless, which made us restless because we wouldn't sleep. He came home on the schedule he was on prior to going into the hospital. We were able to tweak that a little bit. He would get 2.5 oz of formula 4 times a day and then an overnight feeding by pump into his g-tube. Well, the 2.5 oz was very easy for Baby GL to quickly consume so I bumped him up to 3 oz. He managed that with no problems. His reflux seemed to really improve over these last few weeks which keeps him from vomiting. So with the 3 oz he was getting less pumped overnight. We still saw how restless he was so I adjusted a little more. Instead of only getting 4 feedings by bottle we began feeding him all by bottle, which begins at 8am and finishes at 11pm. The luxury of have a g-tube is that he can get a bolus feeding when he's sleeping so the final 11pm feeding is usually fed all through the g-tube. The last couple nights we've been on this schedule, Baby GL has slept so peacefully and slept through the night again. I can't say the doctors will agree with our methods, but I can see how much better Baby GL is.
The nurse came on Tuesday to check in since now we are back on her services. He was weighed and we must be doing something right. He was 11lbs 11oz and 23 inches. He's really been gaining well which is great since he lost so much in the hospital.
Baby GL has really been showing us how big he is. Only in this last week I've seen so many changes. We were able to get a teaspoon of rice cereal in him by spoon, which he seemed to like so we'll continue working on that. He is doing so much better lying on his tummy. He'll push up a little but will just be lazy most of the time and suck his thumb. He seems to fall asleep anywhere now. I could never get him to lay on my chest and fall asleep. Now he seems to really love it, but only on Mommy, not Daddy. This morning he fell asleep playing on his back under the play gym. I think after everything that has happened he's just finally getting into his own. He's happy and comfortable and I think he really knows the difference when he's home compared to being in the hospital.
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