Only a few more days

Last when we left off Baby GL was making huge progress.  I believe we are still in that momentum, however we saw our new physical therapist last Tuesday.  The visit went well, she did an overall evaluation on his skills and play habits.  Different pieces charted him around 5-6 months, others in the 2-3 month range.  After the original evaluation the PT puts him in an overall range of a 2-3 month.  She told us we may need to take our therapy to their other office, which would mean a longer commute each week for therapy.  We are waiting for the verdict of where they want to take his therapy.  We may get OT and Speech from the same clinic which would be good. We are currently enrolled in Waukesha county Birth to 3, but I think therapy from an outsourced clinic would be more aggressive and better for Baby GL's needs.  It's a little difficult to take, hearing that your son, nearly 1 yr, has the "intelligence" of a 2-3 month old.  When I see him and play with him he seems so much older.

So after our visit with PT we had our Birth to 3 Speech therapist come out Wednesday.  She didn't do too much, it was more an overall look into where the therapy should go.  However, this Speech therapist may visit once more but then she's off for 6 weeks so we won't see her.  Outsourcing is sounding like the only option to use to get therapy going.  We just have to wait for approval from the insurance company on what he is eligible for.   So we wait, his fate in there hands.

This week we visited the cardiologist. He hasn't seen one since he was in the NICU and she really didn't do much.  We did get his weight, 13lbs 1oz and the nurse measured 24.5 inches for height.  I'm not sure what to think about it since last clinic visit he was 22.75 inches. I guess just like scales the tape measure have different scales of measurement.  

So the one thing we did get from the cardiology visit was that we will be going forward with an echo to see the hole in his heart which will tell us if he is still in need of the oxygen.  The oxygen helps the blood pressure, so if there's nothing new to see in the echo we can finally be released from the oxygen leash.  At another visit we'll have a CT scan done.  We're unable to have them done together because of the type of sedation they use and the places where the tests take place. The echo is in the cardiology clinic and the CT is down in Radiology.

Doctors and therapy visits aside we are so excited to celebrate Baby GL's first birthday this Saturday.  Since the whole family is traveling it will just be the 3 of us.  It's been a great year.  We've had our challenges, but the end result is a beautiful, cuddly little boy.