This week we had the echo and CT scan done as planned. The CT scan showed the normal patterns that preemie lungs show. With time they will repair themselves. There wasn't any evidence that the feedings were causing harm to his lungs. So in my mind that was good news to keep feeding as we've done. The echo on his heart showed that the hole in his heart is actually getting a little smaller which would mean it may repair itself. However, there is evidence elevated pressure due to the hole. Because of that he will continue wearing the oxygen. I guess it works as a kind medication keeping the elevated pressure under control. We've been referred to see a new clinic for Pulmonary Hypertension. When we see that doctor he may try a medication that would allow Baby GL to be taken off the O2. For now we wait.
Speech came this week. It was our first visit from the Speech therapist from Heath Reach which is the outsourced therapy we decided to go to over doing Birth to 3. The therapy will be a little more consistent and aggressive for him. I'm not sure what we'll be doing with speech, but she did give us some information on beginning sign language with Baby GL. She commented that many children react positively to using sign language. That has been a small project now that I'm working on. If anyone has suggestions for teaching sign language I'd love the help!
We also were visited by Physical Therapy this week. Due to Baby GL's health issues we qualify for home visits, which I prefer until we get fully out of flu season. The PT working Baby GL hard, which was good to see. He is very stubborn now. He doesn't last more than 2 seconds on his tummy until he rolls over. In fact, he begins the rolling once he sees he going to his tummy. She pushed him to stay on his tummy. He shows signs of wanted to move around on his back. When he needs to get somewhere he moves backwards so now we need to work on the crawling. She also working on him sitting up which he's not thrilled with, either. After her visit he took a great nap.
It was a busy week. On top of all that we fit in a visit to a new clinic, Urology. We need to have his Hypospadias repaired. This is when the urethra is on the underside, rather than the end of the penis. The doctor feels he's better off having the repair done now while he's young rather than waiting until he's older. The process will include 2 testosterone injections. One done 6 weeks prior to surgery, the 2nd 3 weeks prior. Can't wait to see how his attitude changes with excess testosterone in his system. The surgery itself will take about under 3 hours and should be able to come home the same day. If, by some chance, there's a little hiccup in his recovery he may stay a night.
Baby GL's next couple weeks will be planned as a vacation to Grandma and Grandpa's house. My husband left to visit family for 2 weeks and I teach early classes so instead of waking Baby GL early to take him to Grandma, better he stays the night and I do the traveling around. He seems to love the stimulation, but hates the loud noises. It's good for him to get the exposure of louder noises because he still startles easily.
I think for this week our only appointments are with therapy. We do have more clinic visit coming. With the weather getting nicer it's been so much easier getting him around. We even took our first walk of the spring season this week. He loved it. He's been trying out his new umbrella stroller. Amazing how big he is now.
Speech came this week. It was our first visit from the Speech therapist from Heath Reach which is the outsourced therapy we decided to go to over doing Birth to 3. The therapy will be a little more consistent and aggressive for him. I'm not sure what we'll be doing with speech, but she did give us some information on beginning sign language with Baby GL. She commented that many children react positively to using sign language. That has been a small project now that I'm working on. If anyone has suggestions for teaching sign language I'd love the help!
We also were visited by Physical Therapy this week. Due to Baby GL's health issues we qualify for home visits, which I prefer until we get fully out of flu season. The PT working Baby GL hard, which was good to see. He is very stubborn now. He doesn't last more than 2 seconds on his tummy until he rolls over. In fact, he begins the rolling once he sees he going to his tummy. She pushed him to stay on his tummy. He shows signs of wanted to move around on his back. When he needs to get somewhere he moves backwards so now we need to work on the crawling. She also working on him sitting up which he's not thrilled with, either. After her visit he took a great nap.
It was a busy week. On top of all that we fit in a visit to a new clinic, Urology. We need to have his Hypospadias repaired. This is when the urethra is on the underside, rather than the end of the penis. The doctor feels he's better off having the repair done now while he's young rather than waiting until he's older. The process will include 2 testosterone injections. One done 6 weeks prior to surgery, the 2nd 3 weeks prior. Can't wait to see how his attitude changes with excess testosterone in his system. The surgery itself will take about under 3 hours and should be able to come home the same day. If, by some chance, there's a little hiccup in his recovery he may stay a night.
Baby GL's next couple weeks will be planned as a vacation to Grandma and Grandpa's house. My husband left to visit family for 2 weeks and I teach early classes so instead of waking Baby GL early to take him to Grandma, better he stays the night and I do the traveling around. He seems to love the stimulation, but hates the loud noises. It's good for him to get the exposure of louder noises because he still startles easily.
I think for this week our only appointments are with therapy. We do have more clinic visit coming. With the weather getting nicer it's been so much easier getting him around. We even took our first walk of the spring season this week. He loved it. He's been trying out his new umbrella stroller. Amazing how big he is now.
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