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Thursday, February 17, 2011

No more shots

There are weeks that just escape my mind.  These last few months have been moving so quickly that I am in amazement that Baby GL is almost a year old.  He's really starting to show his age.  He has been so playful and eager to do things.  Still isn't thrilled with tummy time, but he now knows that as long as he can get that arm out of the way he can roll over and fix that tummy problem.  He still makes his way across the floor on his back.  Every morning he wakes up at the corner of his crib, head crammed against both edges.  As a typical mother I cushion the corners of the crib but I still giggle when I see him fast asleep ass crunched in the corner.

Last Thursday we had a couple visits to the Children's Hospital Clinics. The first place was actually radiology for an ultrasound.  Since he had a blot clot from his picc line I was giving him twice daily injections of a blood thinner.  I was pleased to see the clot was gone.  It was a successful ultrasound.  The process was very entertaining and Baby GL actually did a great job sitting still for as long as he did.  The technician propped his chest with a rolled up towel behind his shoulders.  He found it funny to do crunches all throughout the ultrasound, which made it very difficult for the technician.  It was really cute, though.  Shows his strength and eagerness to sit up.  He doesn't get past a small crunch yet.

After the ultrasound we went over to the Hematology clinic to get the results of the ultrasound.  There we did the typical get him undressed so that the nurses can do his vitals; weight, height, blood pressure, pulse-sox.  After that they take us to a room where we sit and wait. It's a terrible process because you wait longer than it takes to get through the appointment.  Midway through waiting I told the nurse we had another appointment in the GI Clinic.  Well, she ended up sending us up there since the results weren't ready yet.  Well, we made our way from the hospital, which is where Hematology is, over to the clinic building.  There in the GI clinic we once again went through the process of getting Baby GL's vitals.  You would think that the vitals from the other clinic was good enough, but I guess the scales are foreign in each place.  He managed to lose a half ounce between clinics.  The nurse knew that because she saw the vitals in the computer, but still we had to do it all over again.  Something is not quite right with this process.  Aside from vitals, I filled out the same paperwork again and answered all the same questions again.  After that we waited....and waited.  A 20 minute appointment turned into over an hour because of the waiting.

So from the GI clinic we made our way back to Hematology to again wait.  I think these clinics would find better efficiency if they scheduled their appointments by how long an appointment actually takes, but that would just be too obvious.  Over 4 hours we were at Children's. Baby GL was not a happy baby towards the end.  Just at the moment he would fall asleep was when the doctor or nurse would come in.

Well, we survived.  In the end we were pleased to not have to give the daily injections any longer.  The one thing we got from the GI clinic was that we need to schedule a CT scan on Baby GL's lungs to see if any of the aspirating has been doing permanent damage.  So during the appointment this week with the Pulmonary clinic we will get that scheduled.

The rest of the week has run pretty smoothly.  Baby GL plays, talks and we still practice spoon feeds.  I did accomplish getting his physical therapy set up so that will start next week. We'll see how pleased he is with that.   

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