Baby GL is doing much better. The x-ray shows his lungs are much clearer. He still has a cough, mostly when he gets excited. Today the only plan of action is to try him back on the high flow cannula at 6 liters, maybe 40% oxygen. He's been on the C-PAP, with one day of high flow that wasn't very successful. Now he shows signs of being annoyed with the C-PAP so it's time to try the cannula.
With Baby GL back at Children's Hospital we are still able to fulfill his appointments. I was going to take him to switch out his feeding tube to the button on Tuesday. Since he's in patient the team was able to come to him yesterday to get it done. With the button there isn't a long tube hanging around in his clothing for feeding. It's now a tube that gets connected when it's feeding time and disconnected when we're finished. Much nicer. He also has another eye exam. He was scheduled to go in today but since the doctor visits the NICU on Wednesdays she was able to come up to him in the PICU and have it done. Still no need for surgery and they don't need to see him for 3 weeks.
Baby GL's most current weight now is 7lbs 2.5ozs. That's actually down from when he was admitted to the hospital, but only by maybe an ounce. He looks really healthy, keeping the nurses busy with his attitude. He has needed some tylenol since he had his feeding tube switched over just to settle him. I'm sure it wasn't a comfortable procedure.
Our goal is just to work on bringing down his oxygen needs and then he'll be able to come home. I think in the PICu they move more progressively to get the children him. That's wonderful for us. We would love to have him home again and we could only have faith that we won't need to go back to the ER.
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