Baby GL has had a busy week. We started with a trip to his Pediatrician on Monday. Tuesday we got his g-tube repaired which makes feedings so much easier. We were actually able to bump up his appointment to get his g-tube button which will be flat to his flesh rather than a long tube sticking out.
By Thursday we saw the visiting nurse. His most current weight then was 7lbs 1oz. Huge growth over the 7 days he was home. By Friday we had a visit from OT and Speech. They just came to access him and see where he's at with feeding and his muscle control.
The nights are still a little exhausting which was expected. He sleeps pretty much through the night, but come early morning he gets a little fussy and gassy. He is on the continuous feeds through the night and I think he gets full going into the morning and just uncomfortable.
After a great week we were thrilled to go into a long weekend as a family. However, Saturday didn't start great. Unfortunately, Baby GL got a little full on his food and he spit up a lot of it. When Speech came on Friday she gave us some tips on positioning him for better digestion which seemed to work, but we didn't try it that morning. When he does spit up he tends to aspirate causing him to choke a bit. Well, that left him with a bad cough going into Saturday evening, but he managed to rest.
By later into the evening I was becoming more concerned about his cough. We tried to suction his nose and mouth, which didn't go well. I ended up gagging him which just made him spit up again. With that he was wheezing more in his breathing so we tried an Albuterol treatment to open his lungs. It seemed to work by making him more comfortable for a little while. The concern was still there that he was working hard to breath. Llazar ended up holding him through the night just to keep him comfortable and calm. We continued the treatments through the night per pediatrician's advice as well as cutting his feedings down to half to help with his reflux. It's that reflux that really causes a lot of his aspirating.
Sunday, Baby GL's 6 month birthday. We celebrated with a trip to the ER. Unfortunately, Baby GL's breathing got worse. When we tried to get him into his car seat he turned blue and dropped his heart rate. Thank goodness for a heart rate monitor. I held him in my arms while we drove him directly to the ER at Children's just to be safe.
The outcome after x-rays, aspirating pneumonia. He showed a lot of fluid in his lungs so he was put on antibiotics for the pneumonia. After all morning in the ER doing x-rays and multiple attempts to get an IV in we were finally transferred to the 10th floor into a private room under observation. Admitting him took a long time. Everyone asks the same questions over and over.
I think after getting to the ER around 8:30am we finally left the hospital about 3ish. We wanted to run home to shower and eat and just wake up then to return to the hospital. Right as we got home the phone rang and we were told to get back, that they were moving him to the Pediatric Intensive Care Unit because his breathing wasn't improving.
In the PICU he was put on C-PAP which was the added pressure to help reduce the amount of CO2 in his lungs. There are a lot of new monitors and alarms. He seems like he's getting comfortable. I guess his right lung is where the primary pneumonia is. We are waiting to see is there are any other concerns. I has a touch of the flu when he came home so I could have caused some of this discomfort so they took cultures to see. I'm angry at myself because I didn't realize I was sick until it was too late. Allergies and stress are very distracting.
So now we sit on the 5th floor of Children's hospital listening to the constant beep of a monitor praying that our little man will be just fine. What a way to celebrate a 6 month birthday. He was only home 9 days and already he's back in the hospital.
The nights are still a little exhausting which was expected. He sleeps pretty much through the night, but come early morning he gets a little fussy and gassy. He is on the continuous feeds through the night and I think he gets full going into the morning and just uncomfortable.
After a great week we were thrilled to go into a long weekend as a family. However, Saturday didn't start great. Unfortunately, Baby GL got a little full on his food and he spit up a lot of it. When Speech came on Friday she gave us some tips on positioning him for better digestion which seemed to work, but we didn't try it that morning. When he does spit up he tends to aspirate causing him to choke a bit. Well, that left him with a bad cough going into Saturday evening, but he managed to rest.
By later into the evening I was becoming more concerned about his cough. We tried to suction his nose and mouth, which didn't go well. I ended up gagging him which just made him spit up again. With that he was wheezing more in his breathing so we tried an Albuterol treatment to open his lungs. It seemed to work by making him more comfortable for a little while. The concern was still there that he was working hard to breath. Llazar ended up holding him through the night just to keep him comfortable and calm. We continued the treatments through the night per pediatrician's advice as well as cutting his feedings down to half to help with his reflux. It's that reflux that really causes a lot of his aspirating.
Sunday, Baby GL's 6 month birthday. We celebrated with a trip to the ER. Unfortunately, Baby GL's breathing got worse. When we tried to get him into his car seat he turned blue and dropped his heart rate. Thank goodness for a heart rate monitor. I held him in my arms while we drove him directly to the ER at Children's just to be safe.
The outcome after x-rays, aspirating pneumonia. He showed a lot of fluid in his lungs so he was put on antibiotics for the pneumonia. After all morning in the ER doing x-rays and multiple attempts to get an IV in we were finally transferred to the 10th floor into a private room under observation. Admitting him took a long time. Everyone asks the same questions over and over.
I think after getting to the ER around 8:30am we finally left the hospital about 3ish. We wanted to run home to shower and eat and just wake up then to return to the hospital. Right as we got home the phone rang and we were told to get back, that they were moving him to the Pediatric Intensive Care Unit because his breathing wasn't improving.
In the PICU he was put on C-PAP which was the added pressure to help reduce the amount of CO2 in his lungs. There are a lot of new monitors and alarms. He seems like he's getting comfortable. I guess his right lung is where the primary pneumonia is. We are waiting to see is there are any other concerns. I has a touch of the flu when he came home so I could have caused some of this discomfort so they took cultures to see. I'm angry at myself because I didn't realize I was sick until it was too late. Allergies and stress are very distracting.
So now we sit on the 5th floor of Children's hospital listening to the constant beep of a monitor praying that our little man will be just fine. What a way to celebrate a 6 month birthday. He was only home 9 days and already he's back in the hospital.
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